For decades, the mental health field has measured success in serious mental illness (SMI) care by access: appointments scheduled, prescriptions filled, beds available. Access matters. But it isn’t the same as recovery. An appointment, however good, is only a small part of a person’s life with serious mental illness. The rest happens in the days and weeks between visits, and that’s where most families are on their own.
What Happens Between Mental Health Appointments
Consider Maya. She is a composite, drawn from patterns I’ve lived as a caregiver and heard from other families. Maya is 25 and was diagnosed with schizophrenia at 21. She has been stable on medication for 18 months. She sees her psychiatrist every four weeks and lives with her mother, who works full time.
About two weeks after her last visit, Maya’s sleep starts to slip: later bedtimes, more waking at night. A sleep app she downloaded on her own records every night of it. But no one on her care team knows the app exists, and the data has nowhere to go. By week three, she stops answering texts from her closest friend. By week four, she is in the emergency department at 2 a.m.
No one did their job badly. Maya fell into the space no one’s job covers.
How CCBHCs Can Close the Gap Between Appointments
Certified Community Behavioral Health Clinics (CCBHCs_ were built to close exactly this gap. They are meant to be more than a place someone visits once a month. They are meant to support a person’s whole life. In 2025, 539 CCBHCs served 3.4 million people, and more than half were living with serious mental illness or serious emotional disturbance. Technology, used well, can extend that mission into the hours your teams can’t be there.
Here are four places I’d point any CCBHC leadership team.
Use Digital Health Technology to Catch Warning Signs Earlier
With a person’s consent, phones and wearables can collect passive data: sleep, movement, how often someone texts or calls, even speech patterns. These signals can show the quiet shifts that often come days or weeks before a crisis. In one digital phenotyping pilot study, behavioral changes picked up by smartphones were 71% more frequent in the two weeks before a schizophrenia relapse.
This data should support your care coordinators’ judgment, not replace it. For Maya, it could have meant a phone call in week two instead of an emergency visit in week four.
Help People with SMI Address Medication Costs
Cost pushes people off their medication. In a national survey, 1 in 5 adults with disabilities said they did not take their medication as prescribed in order to save money. Yet most families never find the help that already exists: copay cards, patient assistance programs and manufacturer support services.
Some of these programs work very well. For Nuplazid, an antipsychotic used for psychosis in Parkinson’s disease, the manufacturer reports that 9 in 10 patients pay less than $10 out of pocket per prescription. Programs like this often sit unused simply because no one on the care team has time to find them. Pointing families to them costs nothing but attention.
Make Sure Someone Owns the Mental Health Alert
42% vs. 4%
Same suicide-risk flag, same patients. Clinicians did an assessment at 42% of visits when it popped up as an alert, and 4% when it only sat in the chart. (Vanderbilt, 2025)
A warning sign only helps if someone is assigned to act on it. At Vanderbilt, the same suicide-risk flag led to an assessment at 42% of visits when it appeared as a pop-up alert, and 4% when it only sat in the chart. Information in a passive place tends to go unread.
CCBHCs start with an advantage most practices don’t have. Care coordination is already part of the model, and the certification criteria call for 24/7 mobile crisis teams that arrive in person within an hour (two hours in rural and frontier areas). Before you turn on any monitoring tool, decide:
- Who receives a flag during business hours, by role
- How an after-hours flag reaches your crisis team
- What the person and their family should do if no one can respond right away
“A signal nobody owns protects no one.”
Engage Families Before a Mental Health Crisis
Families are often the first to notice the shift: the late nights, the unanswered texts, the meals left untouched. If Maya had named her mother as a contact at intake, a care coordinator could have called her in week two.
The CCBHC criteria already favor shared decision-making and ask teams to consider advance directives in crisis planning. Build on that at intake:
- Ask each person who they want involved in their care.
- Get consent to share information with that person while things are calm.
- Write down a crisis plan or psychiatric advance directive.
A release signed in a stable moment can save days of phone calls during a crisis.
Five Questions for CCBHC Leaders to Ask This Quarter
- What apps and devices are the people you serve already using? Ask at intake, the way you would ask about supplements.
- Who owns a between-visit alert during business hours, by name or role?
- How does an after-hours flag reach your 24/7 crisis team?
- Does intake include consent to share with a chosen family member, and a written crisis plan?
- Who on staff knows the patient assistance programs for your most-prescribed medications?
Start With One Question
None of these ideas replaces the clinical relationship at the center of good care. They recognize that the relationship can’t be the only thing carrying a family through the month between visits. Much of the help already exists. It just isn’t connected to the people who need it.
The families your CCBHC serves aren’t waiting for a perfect system. They’re waiting for someone to hand them a map of what already works. Start with the first question at your next leadership meeting: what are the people you serve already using? The answer may tell you more about the month between visits than any chart can.
About the author
Nicole Drapeau Gillen is a caregiver advocate and the author of Connected Care: A Practical Guide to Technology for Serious Mental Illness and Schizophrenia & Related Disorders: A Handbook for Caregivers. In October 2026, she presented on technology’s role in serious mental illness care at Harvard Medical School Grand Rounds and The Chicago School.